Five-year-old Bayne Krause poses for a photo with his mom Marianne. Bayne’s shirt reads, ‘I have Cystic Fibrosis. Help keep me healthy, please social distance.’ Photo: Laurie Tritschler

Five-year-old Bayne Krause poses for a photo with his mom Marianne. Bayne’s shirt reads, ‘I have Cystic Fibrosis. Help keep me healthy, please social distance.’ Photo: Laurie Tritschler

Grand Forks mom promotes awareness of cystic fibrosis

Marianne Krause wants people to know what it’s like for her five-year-old son to live with CF

A Grand Forks mother is promoting awareness of Cystic Fibrosis (CF) on behalf of her afflicted son.

Over 4,600 Canadians live with CF, a genetic disease that causes chronic lung infections among sufferers, most of whom are children, according to Cystic Fibrosis Canada. Five-year-old Bayne Krause is one of them.

READ MORE: Make-A-Wish: Hillary, 17, goes on dream shopping spree for horse gear

READ MORE: B.C.’s ‘extremely medically vulnerable’ can begin booking COVID-19 shots

Popular misconceptions about the disease are a constant source of frustration for parents like Bayne’s mom, Marianne.

On the one hand, Marianne says people commonly mistake Bayne’s persistent coughing and sweating — the hallmarks of CF — for COVID-symptoms. Bayne does not have COVID, nor is he infectious to others, she told The Gazette.

“My son coughs a lot because he needs to clear his lungs. He is not contagious,” she explained.

On the other hand, she said that people frequently take issue with her vigilance around Bayne’s health. Unlike most five-year-olds, Bayne has to wear a face mask. And he relies on other people not only to wear their face masks, but also to maintain social distancing around him — even though he is almost irresistibly cute.

Kids like Bayne can’t risk getting sick, but it happens. Marianne said it’s touch and go when it does, which is why she said Bayne was rushed to Trail Hospital when he came down with a cold last June. Bayne doesn’t need a fever on top of his condition: His lungs are congested at the best of times, just as his constant sweating leaves him perennially at risk of dehydration.

Most people’s lives don’t revolve around these hard truths, so Bayne literally wears them on his chest.

“I have Cystic Fibrosis,” his T-shirt reads, “Help keep me healthy — please social distance.”

Bayne and his family have gone to great lengths to keep him safe. He hasn’t attended school since the pandemic, Marianne said.

Marianne is asking people who meet Bayne to please respect her and step-dad Charlie’s wishes. Understand that they are taking all the necessary precautions to safeguard his health.

Bayne likes playing disc golf. He likes playing games on his tablet. He likes doing all the things you’d expect most five-year-olds would enjoy. But he needs to take all necessary precautions to stay safe; so that, when the pandemic lifts, he can go back to living his best life.

May is Cystic Fibrosis Month. Marianne and Charlie are asking people to consider wearing the signifying purple ribbon on May 26.

For more information about CF, please consult Cystic Fibrosis Canada’s website at cysticfibrosis.ca.

Grand ForksHealth

Just Posted

FILE – Perry Bellegarde, National Chief of the Assembly of First Nations, takes part in an event on Parliament Hill in Ottawa on Tuesday, July 7, 2020. THE CANADIAN PRESS/Sean Kilpatrick
Indigenous Peoples Day must be a ‘call to action’, says Assembly of First Nations chief

Discovery of children at Kamloops residential school site must lead to change, Perry Bellegarde says

Christina Lake Fire Department’s Chief Joe Geary eyes the camera from behind the wheel of the department’s 40-year-old bush truck. Photo: Laurie Tritschler
Christina Lake FD needs new equipment, upgrades, prompting loan by RDKB

It’s not whether the department needs the equipment, it’s how voters will pay for it, says Regional District

The pilot of this single-engine propeller plane was unhurt after crash-landing in a Como Road orchard Friday, June 18. Photo: Laurie Tritschler
Plane crash lands into Grand Forks orchard, pilot injured

RCMP have secured the crash site, pending investigation by Transport Canada

Students at Creston Valley Secondary School put together an art installation of a replica residential school room. (Photo by Kelsey Yates)
Creston students create art installation of residential school room

The replica was decorated with a small bed, school uniform, and notes written with pleas for help

Greenwood Elementary’s Nelson Thompson (Grade 5) and Lincoln Simmonds (Grade 6) take a fun-filled turn on the swing at Lions Park Thursday, June 17. Photo: Laurie Tritschler
IN PHOTOGRAPHS: ‘This is yours now,’ Greenwood Mayor tells children at playground opening

The opening ceremony at Lions Park was attended by kids from Greenwood Elementary Thursday, June 17

Marco Mendicino, Minister of Immigration, Refugees and Citizenship during a press conference in Ottawa on Thursday, May 13, 2021. THE CANADIAN PRESS/Sean Kilpatrick
Canada to welcome 45,000 refugees this year, says immigration minister

Canada plans to increase persons admitted from 23,500 to 45,000 and expedite permanent residency applications

Tokyo 2020 President Seiko Hashimoto and IOC President Thomas Bach, on a screen, speak during a five=party online meeting at Harumi Island Triton Square Tower Y in Tokyo Monday, June 21, 2021. The Tokyo Olympics will allow some local fans to attend when the games open in just over a month, Tokyo organizing committee officials and the IOC said on Monday. (Rodrigo Reyes Marin/Pool Photo via AP)
Tokyo Olympics to allow Japanese fans only, with strict limits

Organizers set a limit of 50% capacity — up to a maximum of 10,000 fans

The border crossing into the United States is seen during the COVID-19 pandemic in Lacolle, Que. on February 12, 2021. THE CANADIAN PRESS/Paul Chiasson
Border quarantine to soon lift for fully vaccinated Canadians

Eligible travellers must still take multiple COVID-19 tests

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

A portion of the George Road wildfire burns near Lytton, B.C. in this Friday, June 18, 2021 handout photo. THE CANADIAN PRESS/HO, BC Wildfire Service *MANDATORY CREDIT*
Blaze near Lytton spread across steep terrain, says BC Wildfire Service

Fire began Wednesday and is suspected to be human-caused, but remains under investigation

Blair Lebsack, owner of RGE RD restaurant, poses for a portrait in the dining room, in Edmonton, Friday, June 18, 2021. Canadian restaurants are having to find ways to deal with the rising cost of food. THE CANADIAN PRESS/Jason Franson
Canadian restaurateurs grapple with rising food costs, menu prices expected to rise

Restaurants are a low margin industry, so there’s not a lot of room to work in additional costs

RCMP crest. (Black Press Media files)
Fort St. John man arrested after allegedly inviting sexual touching from children

Two children reported the incident to a trusted adult right away

Barbara Violo, pharmacist and owner of The Junction Chemist Pharmacy, draws up a dose behind vials of both Pfizer-BioNTech and Oxford-AstraZeneca COVID-19 vaccines on the counter, in Toronto, Friday, June 18, 2021. An independent vaccine tracker website founded by a University of Saskatchewan student says just over 20 per cent of eligible Canadians — those 12 years old and above — are now fully vaccinated. THE CANADIAN PRESS/Nathan Denette
At least 20% of eligible Canadians fully vaccinated, 75% with one dose: data

Earlier projections for reopening at this milestone didn’t include Delta variant

Most Read